Delaware Team Hope Walk raising awareness for Huntington’s Disease on Oct. 1
LEWES, Del.- If you’re looking for a way to get your exercise in but also raise money for a good cause, the Delaware Team Hope Walk is the perfect event to attend.
The Huntington Disease Society of America’s Northeast Region will host the walk on October 1. This will happen at Cape Henlopen State Park at 11 a.m.
This is the organizations largest grassroots fundraiser helping raise awareness about the fatal genetic disease that affects the nerve cells in the brain.
“We just think it’s important because families need to know that people care; the more they learn about Huntington’s disease, I think the easier it is for the families dealing with it to know that that support is out there,” Virginia Goolkasian, a Northeast Regional Director for the organization, said.
This fundraiser across the US has helped raise more than $20 million over the years that goes to help fund research towards an effective treatment for the disease, as well as other resources.
While this walk is trying to bring awareness to the disease, so are some lawmakers. Senators Gillibrand and Cassidy as well as Representatives Pascrell and Kinzinger reintroduced the Huntington’s disease Parity Act in 2021. We’re told without passage of the HD Parity Act, patients with Huntington’s disease will continue to suffer the mandated 2-year waiting period for Medicare benefits after qualifying for Social Security Disability Insurance. During those two years, the organizations said patients continue to decline, and are falling through the social safety net by being denied access to Medicare when they need it most. To learn more, visit HDSA.ORG/TAKEACTION.
If you would like to register for the event and find more information about it, click here.