Fruitland family continues to raise awareness about rare liver disorder

FRUITLAND, Md. – A local family is bringing awareness to a very rare liver disease which can often lead to liver failure. Recently, The Kearns family celebrated PFIC Awareness Day, also known as progressive familial intrahepatic cholestasis, where children are not able to drain bile from the liver, something that can get worse over time. Their son, Trey, was diagnosed with the disease, but after getting a recent liver transplant he’s on the road to recovery. However, the family says it’s still so important for people to talk and learn about the genetic disorder so that they can get closer to finding a cure and so others facing the battle know they’re not alone.

“If it becomes more of a household name or even a name that medical providers are aware of, is something they can start screening for sooner. With change comes funding, and with funding comes more research, and with more research comes better treatment options. With change comes funding, and with funding comes more research and with more research comes better treatment options,” said one of the founders for the PFIC Advocacy and Resource Network, Tara Kearns.

If you would like to learn more about this disorder you can head to the website that Kearns and other families have created here.

 

Categories: Local News, Maryland