Cystinosis fundraiser a success

For a third year in a row a Georgetown family hosted a fundraiser for a very rare genetic disease. It’s known as cystinosis and their ten-year-old son suffers from it.

The fundraising event is titled Chandler’s Chance.

As the family tells 47 ABC the amount of people that showed up last night for the event truly touched their hearts

“We were hoping and probably expecting 300 people but actually we had 475 people come out, show us their support, donated a ton of money and just we felt the love all over this place last night it was wonderful, overwhelming but wonderful,” said Clinton Moore, Chandler’s father.

The funds from the event are actually not going towards their son Chandler.
Instead, the family is putting it all towards the cystinosis research network.

Moore said he thanks everyone who came to the event and if you’d still like to donate you can donate by following the link here.

 

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