Mother Walks 36 Miles, Raising Awareness For Son's Disease - 47 ABC - Delmarva's Choice

Mother Walks 36 Miles, Raising Awareness For Son's Disease

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DELAWARE - A Sussex County mother is taking thousands of steps through the rain Saturday,  to fight for her son, who someday, may not be able to take any.

After walking more than 20 miles, embraced her friends and family at the American Legion post in Harrington.  A feat in its own right, Brooke Lyons was still only about half way on her nearly 40 mile trek from her home in Seaford, to Legislative Hall in Dover.

She's urging lawmakers to pass legislation to fund research for a debilitating disease that could potentially *kill* her young son.     

"I've tried letters, I've tried emails.  That hasn't gotten the attention that my son needs, so I figure the crazy lady walking from Seaford to Dover will get my representative's attention," says Lyons.

Her husband, Aaron, chiming in, "there's no funding, no research being done at this moment."

Looking at their son, Ryker, you may not be able to see the tough road he has ahead, but the two-year-old  was born with Duchenne muscular dystrophy, a terminal illness affecting some 3,500 boys around the world.

The disease slowly destroys muscle tissue throughout the body, replacing it with scar tissue.    

"By the age of 10, he will be wheelchair bound," says Brooke.  By his teens, Ryker could be on a ventilator, and potentially die by his early twenties.     

On what pushed her hike up Route 13 through the rain, Brooke says "all the thousands of little steps I'm taking are all to save his life."

That's why the mother of three says she couldn't let rain get in the way of her mission, saying "I couldn't postpone it because I can't pause his disease."

"She's got a message to deliver. Rain, sleet, snow, or whatever...she's going.  That's what she's doing, she's going," says Brooke's mother, Lisa.  One of her dozens of supporters along the journey.

Brooke started her journey at 6:00AM.  As of about 6:45pm, she was 2 miles from making it to Legislative Hall.

For more information on Ryker's Fight, visit there Facebook Page HERE.

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