Family Of 16-Year-Old Boy With Muscular Dystrophy Speak Out - 47 ABC - Delmarva's Choice

Family Of 16-Year-Old Boy With Muscular Dystrophy Speak Out

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PRINCESS ANNE, Md. - By his smile, you'd never know 16 year old Tre Johnson Jr. Was fighting the battle of his life. He was diagnosed early on with duchene muscular dystrophy, a terminal disease.

"By age 10 they usually stop walking. By age 12 they're in a wheelchair, and most of the children don't live past 20 years old," Tre's father, Tre Johnson Sr. tells us.

After a recent visit with doctors, the family learned he had a blood clot in his heart, and planned to do whatever Tre wanted in the time he had left.

"What he really wanted to do was go to California that's always been his dream," his father says.

"We had what we needed to go to California we were going to leave on the 27th," he adds.

But Tre and his family will not have the opportunity to take that trip.

"Unfortunately he lost his battle Friday night. It was a long hard battle, but he never faltered. He kept everybody's spirits up and he's still here with us and he wants us to continue to make people aware," Tre's grandmother, Cindy Johnson tells us.

The Johnson's are now vowing to helping others who suffering determined to raise awareness about the condition that took their sons life.

"Tre was the strongest child, human being I ever knew.," his mother Pamela Fischer-Johnson tells us.

"He just wouldn't give up and that's what I want people to know. He didn't give up, his body did," she adds.

Washington High School helped raise $2,800 for the family. The family says that money will now go towards funeral costs. We're also told they want to set up a fund in Tre's name.

If you would like to reach out to the Johnson family call them at 443-397-5506

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